Down Syndrome-Autism Connection™

Resources



When Down Syndrome and Autism Intersect, A Guide to DS-ASD for Parents and Professionals
 (Woodbine House, 2012). 
ALSO AVAILABLE FOR KINDLE.

When Down Syndrome and Autism Intersect offers a thorough examination of the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagnosis and best practices for screening, treatment, and caretaking through the lifespan. This one-stop resource, the first of its kind, will greatly benefit families whose child is already diagnosed, and also those who suspect something more than Down syndrome. Professionals, too, will find information on how to distinguish DS-ASD from a diagnosis of just Down syndrome, and guidance on providing services for children and adults.  Click here to learn more about it!

LOOKING FOR RESOURCES FOR AN AUTISM EVALUATION FOR YOUR LOVED ONE/CLIENT/STUDENT WITH DOWN SYNDROME?  
When seeking an evaluation, be sure to ask if the provider has experience with evaluating autism in a person/child with Down syndrome.

The Association of University Centers on Disabilities (AUCD) may be a great place to start.

Click here to find the AUCD in your area.

To search for Children's Hospitals in your area, consult the Children's Hospital Association's directory.  Click here.

 
WATCH ONE OF OUR INSPIRATIONAL CONFERENCE VIDEOS!  Click
 here.

ARTICLES:

"Autism in Children with Down Syndrome", by Dr. George Capone, Interactive Autism Network at Kennedy Krieger Institute

"Autism and Down Syndrome" by Sue Buckley, Down Syndrome Education Online

Click here to read the following articles in Disability Solutions magazine (September/October 1999):

"More than Down Syndrome: A Parent's View", by Joan E. Guthrie Medlen
"Down Syndrome and Autistic Spectrum Disorder: A Look at What We Know", by George T. Capone, MD
"Dual Diagnosis: The Importance of Diagnosis and Treatment", by Bonnie Patterson, MD
"Language & Communication: The Key is Effectiveness", by Julie Bierman Gee, MS, CCC-SLP
"Gross Motor Development in Children with Down Syndrome and Autistic Spectrum Disorder: Clinic Observations", by Patricia C. Winders, PT
"Changing Behavior...& Teaching New Skills", by Naomi Swiezy, PhD
"Sensory Integration: Observations of Children with Down Syndrome and Autistic Spectrum Disorders", by Mary Lashno, OTR

Bella Online: Down Syndrome and Autism Dual Diagnosis

Diagnosis of Autism in Children with Down Syndrome
 
by Glenn Vatter

Guide for Exploring Feeding Behavior in Autism

List of Autism Therapies and Treatments

Educational Resources

HEALTHCARE GUIDELINES:
American Academy of Pediatrics has announced that the parent version of the Down syndrome "Healthcare Guidelines" has been posted on the Healthychildren.org
website. 

ASSISTANCE WITH SOCIAL SECURITY QUESTIONS:
The Social Security Disability Resource Center (SSDRC.com) is an informational website that provides answers to questions about how to apply for social security disability, appeal a claim in the event of a denial, navigate the federal system, and how to avoid common mistakes made by applicants. The site’s author is a former disability examiner for the Social Security Administration.  Here is a link to the site's home page: http://www.ssdrc.com/

                                                          Have something to add to this list? Contact us!

[Disclaimer: It is our pleasure to provide information and resources, however the Down Syndrome-Autism Connection does not make recommendations for medical care, therapies, interventions or other services.  We strongly urge you to do the research necessary to make the most appropriate decisions for your child, loved one, patient or client.]