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"Get Connected" Information Kit

Our “Get Connected” Information Kits are great for new families on this journey, as well as for medical professionals and educators.  It includes facts sheets, articles, information about autism treatments, and inspirational stories from parents who have walked the DS-ASD journey.

 

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Places to get an autism evaluation

When seeking an evaluation, be sure to ask if the provider has experience with evaluating autism in a person/child with Down syndrome.  Many families seek an appointment with an AUCD center, a developmental pediatrician, or Down syndrome clinic.

The Association of University Centers on Disabilities (AUCD) may be a great place to start.

If you would like to search for Children's Hospitals in your area, consult the Children's Hospital Association's directory.  

Find a Down Syndrome clinic near you by using National Down Syndrome Society Clinic Map.

Down Syndrome Clinic to You is an on-line clinic if you live in an area where you don't have access to a Down syndrome specialty program.  Every time you have new medical concerns or have a well visit with your child's primary care provider, DSC2U is here to help with expert medical advice for your loved one with Down syndrome.  For more information about Down Syndrome Clinic to You (DSC2U), please visit https://www.dsc2u.org/.  

Additional Autism Resources

Down Syndrome Resource Foundation, Burnaby, BC (https://www.dsrf.org/information/autism/)

Autism Speaks (https://www.autismspeaks.org/down-syndrome-and-autism-spectrum-disorder-ds-asd)

Charlie's Clinic Down syndrome and autism resources (https://sites.google.com/view/charlies-clinic/learningdevelopment/autism?authuser=0)

Autism Discussion Page on Facebook, Bill Nason

Better IEP’s Master Coach: Catherine Whitcher, M.Ed (https://www.masteriepcoach.com/) - also on Facebook and Instagram

Wrightslaw Special Education Law and Advocacy (https://www.wrightslaw.com/)

Supplemental Security Income (SSI) for qualifying families (https://www.ssa.gov/ssi/)

State by State list of Medicaid Waiver Funding, for in home family support (http://medicaidwaiver.org/)

Augmentative and Alternative Communication (AAC) Low Tech Library Templates (https://www.dscba.org/Augmentative-Alternative-Communication.php)

 

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